It’s been a while! I can’t remember the last time I talked about my health on the blog so I thought I would give an update on all things chronic pain, brain tumors, and disability.
September is National Pain Awareness Month, something that I didn’t know existed, but I’m here for it. This is just a little stream of consciousness about my own struggles with pain.
WARNING: This blog is meant to be about me—through the highs and the lows—and well, here are some lows. This is a sad and sappy blog post, but I just need to get my thoughts out. And what better way than for a bunch of strangers on the Internet?
I didn’t get much out of my trip to the Mayo Clinic in December of 2017. I was there to be evaluated for everything. Having been sick for so long, we were at a point where we would do just about anything to narrow down a diagnosis. I had one of the most elaborate and detailed neuro and general exams, tons of tests, and they took nine vials of my blood! Eight days in Rochester, Minnesota (in the snow!) and all I really learned was that my brain tumor hadn’t grown any bigger and that I was lactose intolerant.
My chronic pain consumes my entire life. It’s absolutely exhausting. I can’t control how I’m going to feel each day. The amount of times I’ve had to cancel plans or bail on my friends and family because the pain is so excruciating it hurts to breathe.