An incredible true story of strength, honesty, and heartbreak that will hopefully bring awareness to an underfunded and ignored disease, Myalgic Encephalomyelitis (M.E.)
It’s been a while! I can’t remember the last time I talked about my health on the blog so I thought I would give an update on all things chronic pain, brain tumors, and disability.
“Oh my God, it’s so great to see you! What have you been up to since school?”
September is National Pain Awareness Month, something that I didn’t know existed, but I’m here for it. This is just a little stream of consciousness about my own struggles with pain.
June is National Migraine and Headache Awareness Month. Wear purple to show your support for advocacy, education, and research.
How do you know when to seek help?
It’s Fibromyalgia Awareness Day! I was diagnosed six years ago when I was still in college. Fibromyalgia impacts my entire life: physically, emotionally, and mentally.
There is no cure. It only gets harder. All we have is to raise awareness and to get people to understand and listen. No I’m not “lazy,” or “faking it.” Just because we don’t look sick on the outside doesn’t mean we aren’t a complete mess on the inside.
One of the biggest joys of living in Southern California is obviously the weather…and Disneyland. We don’t really have specific seasons. It’s pretty much 75°F all year round. And because we are still in a severe drought, it’s very dry. The summers can get pretty hot, but I’ll take it for a winter in shorts and a T-shirt. Ideal weather for someone suffering from chronic pain? For the most part, yes.
Something about me: I’ve been sick for about nine years. It all started New Year’s Eve 2008, halfway through my senior year of high school. I had my very first migraine and from that day on, I’ve had some type of headache every day. Every day for the past nine years. Then in the middle of college, I was diagnosed with fibromyalgia. Strange word, right? Fibromyalgia is a disorder that causes widespread pain, fatigue, memory issues, and basically anything else that can go wrong with your body. One way to look at it: my body feels like a gigantic bruise. My headaches only added to the problem. I spent a lot of time stuck in bed. I STILL spend a lot of time stuck in bed.