I really do have a lot to be thankful for this year:
Painsomnia—it’s not an actual medical term, but anyone in the chronic pain community knows exactly what you’re talking about.
Saturday was my headiversary. Three years ago, on October 13th, 2015, I had brain surgery to remove a tumor.
I’ve officially been in Florida for almost three weeks and things are finally starting to calm down. Read More »
“How much pain for how long is OK before it’s acceptable to just give up?”
Ever since finding the website the Mighty, I’ve had so many more instances of acceptance when it comes to my chronic pain. When you’re diagnosed so young—20-years old is pretty young for a life-long condition in my book—it’s easy to feel so alone. Unknowingly, you start to isolate yourself from friends and family and start to feel like no one else could ever understand how you feel.
The other day I came across an article on the Mighty titled: “18 Taboo Topics About Chronic Illness You’re Not the Only One Having.” It felt as if the dark and gloomy sky had opened up and the sun starting shining down on me. I was finally being heard. Here are some of my favorite topics that come directly from the Mighty community:
“I actually look forward to procedures that require anesthesia because I get to go right to sleep. That’s so sad to me.”
“[I worry] nobody will love me because I’m sick.”
“I think about how much I dread going to the doctor. I hope I have enough symptoms to have them believe me and take me seriously. But I don’t want enough symptoms and hurt going on to warrant a crash. It’s complicated.”
“I think pretty regularly that I’m a burden to everyone around me, and that if only I wasn’t sick. I have been known to think I would be better not being here, not that I want to die, just that my life isn’t exactly worth it because I don’t really do anything. I’m ‘failing.’”
“My taboo thoughts have always been that I hope my tests come back showing something. More clues as to what is going on or why it is happening. Most of my test results come back normal or just ever so slightly off. Nothing is ever off the charts or crazy enough to get the attention I feel I need.
“Any drug that makes me sleepy or slightly ‘stoned’ I love.”
“I feel frustrated every single day. Because the person I am now can’t even do 10 percent of the things I could do before I was sick. I’m constantly irritated and grouchy due to frustration.”
I no longer felt so alone. I’ve had some version of these thoughts ever since I’ve been sick. These aren’t things I can talk about with other people, especially people who have no idea what you’re going through. And to the outside world, I have a wonderful middle-class life filled with a supportive family, successful friends, and financial stability. But if you take the time to look closer, you would see that those successful friends don’t have time for you and that financial stability comes from your parents because you’re unable to work and provide for yourself. We try to put up a front, but on the inside our thoughts are dark and lonely. Knowing there are people out there that share your thoughts—share your pain—the world doesn’t feel so alone anymore.
Today I am 27 years old. The past few years, my birthday hasn’t been the most exciting thing in the world, but that’s just what happens as we get older. You know you’re in adulthood when you’re excited to get new prescription glasses as your birthday present. As a way for my readers to get to know me a little bit, I thought I would provide you with 27 facts about me in honor of turning 27. Enjoy!
Music was a huge part of my upbringing—we are a music kind of family. My first cassette tape that I bought myself was Jewel’s Pieces of Me and my first CD was No Doubt’s Tragic Kingdom. Most parents either listened to a lot of oldies or the local pop and Top 40 station on the radio. My parents weren’t going to sacrifice their ears to Britney Spears and N’SYNC, so we had to listen to what they wanted to hear—current alternative rock as well as classic rock. Boy bands and pop stars just weren’t a part of my life, except for the greats like Spice Girls and Destiny’s Child.